rare disease

My Cancer Turned Out to Be a Rare Disease

February 27, 2025

As told to Jacquelyne Froeber “I’ve never seen anything as invasive as this in my life,” my surgeon said. I was still groggy from the anesthesia, but the look on his face meant what I heard was true. Apparently, I was in surgery for six hours — not two — and whatever was growing in […]

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rare disease, Rare Disease Day, uncommon

Rare Diseases 101 – HealthyWomen

January 24, 2025

February 28, 2025 is Rare Disease Day. By definition, “rare” means uncommon. Unusual. Words you typically don’t think of when you’re thinking about your health. But living with a rare disease is a reality for a lot of people. Rare diseases affect 400 million people worldwide and 30 million people in the U.S. That means

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